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These links offer clients, parents and caregivers access to reliable health care
information and general advocacy resources.
American Academy of Pediatrics - The AAP is dedicated to
the health of all children. Its member pediatricians are committed to the
attainment of optimal physical, mental, and social health and well-being for all
infants, children, adolescents, and young adults.
Administration on Developmental
Disabilities – The ADD is the U.S. Government organization
responsible for implementation of the Developmental Disabilities Assistance and
Bill of Rights Act of 2000, which ensures that individuals with developmental
disabilities and their families participate in the design of and have access to
culturally competent services, supports, and other assistance and opportunities
that promotes independence, productivity, and integration and inclusion into the
community.
California State Council on Developmental
Disabilities – The SCDD is a federally-funded independent state
agency established in federal and state law to assist in planning, coordinating,
monitoring and evaluating services for individuals with developmental disabilities
and their families.
Family
Village--A global community that integrates information, resources, and
communication opportunities on the Internet for persons with cognitive and other
disabilities, for their families, and for those that provide them with services and
support. Our community includes informational resources on specific diagnoses,
communication connections, adaptive products and technology, adaptive recreational
activities, education, worship, health issues, disability-related media and
literature, and more.
Foundation for People with
Learning Disabilities – A charity established in the UK in 1998 whose
mission is to use research and projects to promote the rights of people with
learning disabilities and their families. The foundation works with people and
their families to ensure they can use effective services, play a fuller part in
communities and society, and enjoy equal rights.
Harriet Lane Links –
Formerly known as Pediatric Points of Interest, this site provides an edited and
reviewed collection of pediatric resources (6273 links) on the World Wide Web.
Maintained and edited at the Johns Hopkins University, this site catalogs, reviews,
and scores existing links to pediatric information on the internet.
Neuroguide: Information on Human
Neurological Diseases – This search engine provides an index of
neuroscience resources available on the Internet. Follow these links for specific
resources on stroke or
cerebral
palsy.
National Institutes of Health--National
Institute of Neurological Disorders and Stroke – NINDS is the
nation’s leading supporter of biomedical research on disorders of the brain
and nervous system. The mission of NINDS is to reduce the burden of neurological
disease - a burden borne by every age group, by every segment of society, by people
all over the world.
The National Dissemination Center for Children
with Disabilities – NICHCY is a center that provides information to
the nation on disabilities in children and youth; programs and services for
infants, children, and youth with disabilities; IDEA, the nation's special
education law; No Child Left Behind, the nation's general education law; and
research-based information on effective practices for children with disabilities.
National Stroke Association –
NSA, the leading resource for stroke, is the only national non-profit organization
in the United States devoting 100 percent of its resources to stroke through a
variety of innovative and high impact programs. NSA’s mission is to reduce
the incidence and impact of this life-threatening medical condition, to save lives,
to improve quality of care, and to increase patient outcomes.
National Institutes of Health: National
Institute of Child Health and Human Development – Part of the NIH,
which is the biomedical research arm of the U.S. Dept of Health and Human Services,
the mission of the NICHD is to ensure that every person is born healthy and wanted,
that women suffer no harmful effects from reproductive processes, and that all
children have the chance to achieve their full potential for healthy and productive
lives, free from disease or disability, and to ensure the health, productivity,
independence, and well-being of all people through optimal rehabilitation.
National
Institute on Disability and Rehabilitation Research – NIDRR is one of
three components of the Office of Special Education and Rehabilitative Services at
the U.S. Department of Education. Created in 1978, it is the mission of NIDRR to
generate, disseminate and promote new knowledge to improve the options available to
disabled persons.
The National Rehabilitation Information
Center – NARIC is committed to providing direct, personal, and
high-quality information services to anyone interested in disability and
rehabilitation issues. We are committed to serving consumers, researchers, family
members, health professionals, educators, counselors, students, librarians, and
administrators throughout the country.
Pathways Awareness Foundation - Pathways Awareness
Foundation is a national non-profit organization dedicated to raising awareness
about the benefit of early detection and early therapy for children with
physical movement differences.
Schwab Foundation for Learning
- A Parent’s Guide to Helping Kids with Learning Difficulties
Sensory Integration International– SII is a
non-profit corporation concerned with the impact of sensory integrative problems
on people's lives. SII brings together professionals, individuals, families, and
researchers who want to know more about sensory integration. SII’s mission
is to promote knowledge of Sensory Integration and its impact on people’s
lives.
United Cerebral Palsy - UCP is the leading source of
information on cerebral palsy and is a pivotal advocate for the rights of
persons with any disability. As one of the largest health charities in America,
UCP's mission is to advance the independence, productivity and full citizenship
of people with disabilities through an affiliate network.
Exceptional Parent Magazine -
EP’s on-line resource continues to provide information, support, ideas,
encouragement and outreach for parents and families of children with disabilities,
and the professionals who work with them.
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