These links offer clients, parents and caregivers access to reliable health care information and general advocacy resources.
Administration on Developmental Disabilities - The ADD is the U.S. Government organization responsible for implementation of the Developmental Disabilities Assistance and Bill of Rights Act of 2000, which ensures that individuals with developmental disabilities and their families participate in the design of and have access to culturally competent services, supports, and other assistance and opportunities that promotes independence, productivity, and integration and inclusion into the community.
American Academy for Cerebral Palsy and Developmental Medicine - The AACPDM is a multidisciplinary scientific society devoted to studying cerebral palsy and other childhood onset disabilities, to promoting professional education for the treatment and management of these conditions, and to improving the quality of life for people with these disabilities.
American Academy of Neurology - The AAN is an international professional association of more than 18,000 neurologists and neuroscience professionals dedicated to providing the best possible care for patients with neurological disorders.
American Academy of Pediatrics - The AAP is dedicated to the health of all children. Its member pediatricians are committed to the attainment of optimal physical, mental, and social health and well-being for all infants, children, adolescents, and young adults.
American Occupational Therapy Association, Inc - The AOTA is a nationally recognized professional association of approximately 40,000 occupational therapists, occupational therapy assistants, and students of occupational therapy. The AOTA mission is to advance the quality, availability, use, and support of occupational therapy through standard-setting, advocacy, education, and research on behalf of its members and the public.
American Physical Therapy Association - The APTA is a national professional organization representing more than 63,000 physical therapists, physical therapy assistants and students of physical therapy. The APTA mission is to further the profession's role in the prevention, diagnosis, and treatment of movement dysfunctions and to enhance the physical health and functional abilities of members of the public.
American Speech-Language-Hearing Association – ASHA is the professional, scientific, and credentialing association for more than 115,000 members and affiliates who are audiologists, speech-language pathologists, and speech, language, and hearing scientists. The ASHA mission is to promote the interests and provide the highest quality services for professionals and to advocate for people with communication disabilities.
Association of University Centers on Disabilities – The AUCD is a non-profit organization that promotes and supports a national network of interdisciplinary university centers that advance policy and practice for and with individuals with developmental and other disabilities, their families, and communities.
California State Council on Developmental Disabilities – The SCDD is a federally-funded independent state agency established in federal and state law to assist in planning, coordinating, monitoring and evaluating services for individuals with developmental disabilities and their families.
Cure SMA – Cure SMA is dedicated to the treatment and care of spinal muscular atrophy (SMA). Since 1984, Cure SMA has grown to be the largest network of individuals, families, clinicians, and research scientists working together to advance SMA research, support the full SMA community, and educate the public and professional communities about SMA. The organization has directed and invested in comprehensive research that has shaped the scientific community's understanding of SMA, led to breakthroughs in treatment and care, and provides individuals and families the support they need today.
Exceptional Parent Magazine – EP’s on-line resource continues to provide information, support, ideas, encouragement and outreach for parents and families of children with disabilities, and the professionals who work with them.
Family Village – The Family Village is a global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them with services and support. Our community includes informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship, health issues, disability-related media and literature, and more.
Foundation for People with Learning Disabilities – A charity established in the UK in 1998 whose mission is to use research and projects to promote the rights of people with learning disabilities and their families. The foundation works with people and their families to ensure they can use effective services, play a fuller part in communities and society, and enjoy equal rights.
International Bobath Instructors Training Association – IBITA is the international organization of Instructors, teaching the Bobath Concept applied to the assessment and treatment of adults with hemiplegia and allied neurological conditions. IBITA, headquartered in the Netherlands, was founded in 1984 for the specific purposes of providing a forum for defining the continued interaction and education of its present instructors, training future instructors, and formulating the Bylaws and Rules & Regulations of the organization with respect to the teaching of the Bobath Concept worldwide. Today IBITA unites Instructors worldwide, representing 250 members in 26 countries.
The National Dissemination Center for Children with Disabilities – NICHCY is a center that provides information to the nation on disabilities in children and youth; programs and services for infants, children, and youth with disabilities; IDEA, the nation's special education law; No Child Left Behind, the nation's general education law and research-based information on effective practices for children with disabilities.
National Institute on Disability and Rehabilitation Research – NIDRR is one of three components of the Office of Special Education and Rehabilitative Services at the U.S. Department of Education. Created in 1978, it is the mission of NIDRR to generate, disseminate and promote new knowledge to improve the options available to disabled persons.
National Institutes of Health--National Institute of Neurological Disorders and Stroke – NINDS is the nation’s leading supporter of biomedical research on disorders of the brain and nervous system. The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.
National Institutes of Health: National Institute of Child Health and Human Development – Part of the NIH, which is the biomedical research arm of the U.S. Dept of Health and Human Services, the mission of the NICHD is to ensure that every person is born healthy and wanted, that women suffer no harmful effects from reproductive processes, and that all children have the chance to achieve their full potential for healthy and productive lives, free from disease or disability, and to ensure the health, productivity, independence, and well-being of all people through optimal rehabilitation.
The National Rehabilitation Information Center – NARIC is committed to providing direct, personal, and high-quality information services to anyone interested in disability and rehabilitation issues. We are committed to serving consumers, researchers, family members, health professionals, educators, counselors, students, librarians, and administrators throughout the country.
National Stroke Association – NSA, the leading resource for stroke, is the only national non-profit organization in the United States devoting 100 percent of its resources to stroke through a variety of innovative and high impact programs. NSA’s mission is to reduce the incidence and impact of this life-threatening medical condition, to save lives, to improve quality of care, and to increase patient outcomes.
Pathways Awareness Foundation - Pathways Awareness Foundation is a national non-profit organization dedicated to raising awareness about the benefit of early detection and early therapy for children with physical movement differences.
Schwab Foundation for Learning - A Parent's Guide to Helping Kids with Learning Difficulties.
United Cerebral Palsy - UCP is the leading source of information on cerebral palsy and is a pivotal advocate for the rights of persons with any disability. As one of the largest health charities in America, UCP's mission is to advance the independence, productivity and full citizenship of people with disabilities through an affiliate network.